Body, Mind, Soul,
The Marie Curie Palliative Care Institute, University of Liverpool
"Our aim at the Institute is to be a recognised centre which improves the care of the dying, locally, nationally and internationally. This is mainly done through research, training and also finding new ways to help doctors and nurses to provide the best care possible and improve care for patients, their families and loved ones. We work with other experts on studies that give us strong and reliable evidence. This evidence tells us about the best way to care for and support patients and their families at the end of life. It also shows us what changes will be needed within our health care to support doctors and nurses to provide better care."
The Cicely Saunders Institute for Palliative Care, King’s College, London
"The Institute is the first academic institution in the UK devoted to this field of study. Opened in May 2010, the Institute offers palliative care courses and other relevant resources, bringing together academics, healthcare professionals, community organisations, patients and carers in one centre and acts as the hub for a network of international research. It offers high quality palliative care solutions to patients, as well as providing education, patient information and support.
Research focuses on evaluating and improving care for people with cancer, respiratory disease, heart failure, liver, kidney and neurological disorders. We do not treat only the disease itself and are discovering new ways of controlling common and distressing symptoms such as pain, nausea and fatigue. New treatments are evaluated in clinical trials which offer benefits to future and current patients."
International Observatory on End of Life Care, Lancaster University
"The aim of the International Observatory on End of Life Care is to undertake high quality research, clinical studies, evaluation, education, advocacy and consultancy to improve palliative and end of life care for patients and family carers. The Observatory works closely with the local health and social care community in the North West [of England], as well as nationally and internationally. We offer a range of methodological and theoretical expertise drawn from clinical and social science perspectives. Our aims are to improve palliative and end of life care for patients and carers."
End of Life Studies at Glasgow University
A blog by Professor David Clark focuses on academic work on end of life care at the University of Glasgow. “Over time you can follow here the progress of a major study of interventions at the end of life, funded by the Wellcome Trust, that is starting in early 2015. …. I will be providing information about research projects, publications, doctoral studies, teaching and public events concerned with end of life issues. The scope will be local, national and international.”
The King’s Fund, England, on Palliative Care
"The King's Fund is an independent charity working to improve health and health care in England. We help to shape policy and practice through research and analysis; develop individuals, teams and organisations; promote understanding of the health and social care system; and bring people together to learn, share knowledge and debate. Our vision is that the best possible care is available to all."
End of Life Care Research Group, Belgium
"The End-of-Life Care Research Group is an Alliance between the Vrije Universiteit Brussel and Ghent University. The Alliance research group strives to establish an extensive interdisciplinary and interuniversity collaboration that benefits the quality of scientific research in the domain of end-of-life care, palliative and supportive care, and medical end-of-life decision making.
The End-of-Life Care Research Group is comprised of more than 30 staff members with backgrounds in sociology, health sciences, psychology, ethics, medicine and nursing. Research can be characterised as public health research, health services research or clinical research. The research group also has intensive international collaborations with research groups in Canada, Denmark, Italy, the Netherlands, Norway, Spain, Sweden, Switzerland, UK and USA."
WHO Collaborating Centre for Public Health Palliative Care Programmes, Spain
"The Centre was established to provide support on development of national palliative care programmes globally through a public health approach, in collaboration with WHO headquarters and the respective Regional Offices, giving priority to less developed countries in Europe and Latin America. The Centre carries out research on the effectiveness of palliative care and the adaptability and transferability of models. It collaborates in the elaboration of guidelines/tools, and to support countries in evaluation."
RAND on Hospice and Palliative Care, USA
"The RAND Corporation is a non-profit institution that helps improve policy and decision-making through research and analysis. RAND research spans energy, education, health, justice, the environment, and international and military affairs. As a nonpartisan organization, RAND is widely respected for operating independent of political and commercial pressures. Quality and objectivity are our two core values. RAND's research is commissioned by a global clientele that includes government agencies, foundations, and private-sector firms."
The National Institute of Nursing Research (NINR), USA
"NINR supports research that addresses NINR's strategic focus on end-of-life (EOL) and palliative care science. Because of nursing science’s emphasis on understanding and enhancing the care of persons with chronic, life-threatening conditions across the lifespan, the Director of NIH designated NINR as the lead institute for end-of-life research in 1997. In 2009 NINR has established the Office of Research on End-of-Life Science and Palliative Care, Investigator Training, and Education (OEPC)."
Centre for End of Life Transition Research (CEoLTR), University of Illinois, Chicago
"The CEoLTR was originally funded by the the National Institutes of Health/the National Institute of Nursing Research. Its purpose is to advance the science of care for people facing the end-of-life transition across the life span (e.g., infants, children, adolescents, adults, and older adults). We emphasize patient-centered, family-focused respectful death with planning for end-of-life care that is consistent with the patients’ and families’ values and priorities (e.g., awareness about ways people die and advance care planning) and expected death experiences (e.g., palliative care, approaching dying, and bereavement)."
Palliative Care Research Cooperative Group (PCRC), USA and Australia
"Duke University and the University of Colorado School of Medicine jointly lead a consortium dedicated to clinical research in palliative medicine. The Palliative Care Research Cooperative (PCRC) is funded by a grant from the NIH/National Institute for Nursing Research. It was established in 2010 to create a network for academic community palliative care providers to engage in research opportunities."
The Palliative Care Clinical Studies Collaborative (PaCCSC), Flinders University, Australia
"PaCCSC is a research group that consists of a central coordinating agency based at Flinders University, a governance structure including a Management Advisory Board (MAB), Scientific Committee and Trials Management Committee, and a number of organisations located throughout Australia that collaborate to undertake Phase III and Phase IV clinical medication studies in palliative care. PaCCSC is funded by the Australian Government Department of Health and Ageing."
"The aim of these studies is to provide the additional evidence necessary to support the registration for listing of medicines used in palliative care on the Pharmaceutical Benefits for Palliative Care. This will help maintain comfort and function during the terminal phase of a person’s life when people are being cared for at home."
Te Arai, the Palliative and End of Life Care Research Group, School of Nursing, University of Auckland, New Zealand
"The Palliative and End of Life Care Research Group aims to conduct high quality, multi-disciplinary research that informs practice and policy in palliative and end of life care both nationally and internationally."